The Cost of GoFundMe Healthcare

The recessive gene for Canavan, as for the better-known Tay-Sachs disease, crops up most often in the Ashkenazi Jewish population, and Gabi and Zohar found that they were both carriers—meaning that any children they conceived would have a one-in-four chance of being born with the disease. The Ilinetskys said that the therapy shows signs of success: Yael can reach out, grab toys, and do other things that many Canavan babies can’t, and Yoel seems more alert. “When we started the fund-raising campaign, it was something that I personally didn’t feel comfortable with,” Zohar Ilinetsky told me when I visited him and Gabi at home one morning.

Source: www.newyorker.com